When you are sitting in a doctor’s office and realize the doctor made up his mind about you and your illness long before he ever met you—and is certain you just need a some nice antidepressants to cure your CFIDS/ME, Fibro, Lupus, Vasculitis, SJS, IBS, Hashimoto’s, RA, or other (forgive me for not listing) autoimmune disorder that takes more than five seconds to diagnose. Or you never even make it to the doctor and only get a PA, who does the same thing.
When I was a kid and adults would ask me,”What do you want to be when you’re all grown up?” I never thought to reply with, “healthy.”
#lupus #lupussisters #spoonies #pain
Put off doing most things necessary to be a functioning human being on bad days.
Wake up on a good day.
Do everything that you should have done all those other days and play ultimate catch up.
Break yourself and return to step one.
Having Lupus means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about Lupus and its effects, and of those that think they know, many are… actually mis-informed. In the spirit of informing those…
Photographed in Ottawa, Ontario on 02/12/14